The A.L.S. Family Charitable Foundation is dedicated to the care of patients and families affected by A.L.S. today and the cure for A.L.S. in the future. We strive to be a system where families support each other to overcome this disease.
Some words from our family...
“Thank you so much for your kind and generous gift to my brother David. Organizations like yours give the A.L.S. patients hope. I cannot imagine where we would all be without the help, love and support you have shared with us.”
- Karen A. and David S. *Sadly, David lost his battle with A.L.S. this year. We send his family our deepest condolences.
“You know you’re amazing right? That one line says it all. Again many, many thanks! We put him down for the night at 4:30pm the night our new mattress arrived, he was sound asleep at 4:31pm! Your organization is so empathetic and sympathetic to what we are going through. Hope you all have a wonderful holiday, you certainly made ours!”
- Tim and Debbie M.
“I just wanted to thank you for awarding me a college scholarship. It truly means a lot to me and my family to have received something like this. I know that it will help greatly as I continue to pursue my education at George Washington University in the Fall.”
- Phil H.
“We want to thank everyone from the A.L.S. family for all you have done for me and my family. We had a great time on our vacation.”
- Grace L.
“Thank you so much for the wonderful day yesterday at Foxwoods. It was a nice day to get out and come together for good fun, good food and meeting some very special people! We appreciate all that you do.”
- Frank and Rita
“Thank you for helping me get a laptop! You have been wonderful to Ed and
I over the years.”
- Barbara and Ed M. *We are sorry to say that Barbara passed away this year after battling A.L.S. for over 20 years. Our thoughts and prayers are with her family.
“Thank you for your continued support and your generosity. The gift cards are truly appreciated and helped make the kid’s Christmas better!
- Larry, Bonnie, Daniel & Michael G.
In addition to patient services, we offer financial contributions to the following medical research institutions:
Dr. Robert Brown, Department Chair of Neurology at the UMass Memorial Medical Center and Umass Medical School
Dr. Brown has been conducting research for finding the cure for A.L.S. since 1979. Recently appointed the head of neurology at University of Massachusetts Medical School and UMass Memorial Medical Center, Dr. Brown is single-minded in his determination to find better treatments for the devastating diagnosis of A.L.S. and hopes to find a faster pathway to treatments at the state's medical school. Dr. Brown has produced some of the most cutting-edge and creative projects in A.L.S. research during his work in the past 30 years.
The David M. Dorfman Research Fund for Today's A.L.S. Patients: A.L.S. TDI
The mission of the A.L.S. Therapy Development Institute (A.L.S. TDI) is to develop effective therapeutics that stop ALS as soon as possible. Focused on meeting this urgent unmet medical need, A.L.S. TDI executes a robust discovery program, as well as a multi-pronged approach to validate potential therapeutics; including small molecules, protein biologics, gene therapies and cell-based constructs. The Institute's unique, industrial-scale platform allows for the development and testing of dozens of potential therapeutics each year. Built by and for patients, the Institute is the world's largest A.L.S. research center and the only nonprofit biotechnology company with more than 30 professional scientists focused on a single disease indication. In addition, the Cambridge, Massachusetts based research Institute collaborates with leaders in both academia and industry.